Activismo contra el estigma: Exploración de actividades de sensibilización en el contexto sanitario

Autores/as

Resumen

El estigma que sufren las personas con diagnósticos de salud mental es algo frecuente dentro del ámbito sanitario. Entidades y campañas de lucha contra el estigma han centrado sus esfuerzos en la disminución de la discriminación en este ámbito. La figura del activista es fundamental para que las propias personas que han experimentado este estigma sean protagonistas de este cambio. Nuestro objetivo en este estudio ha sido profundizar en la experiencia que las y los activistas contra el estigma en salud mental tienen al participar en acciones de sensibilización en el contexto sanitario. Hemos realizado un análisis temático de entrevistas semiestructuradas a cinco activistas. Se han identificado dos bloques temáticos: Estigma y Activismo. El bloque de Estigma consta de los temas Prejuicios, Conductas discriminatorias y Autoestigma, mientras que el bloque de Activismo está compuesto por los temas Efectos positivos, Estrategias e Impacto. El presente estudio nos ha permitido conocer en profundidad las experiencias subjetivas de estigma dentro del ámbito sanitario a través de la experiencia de las personas participantes en campañas para combatirlo y entender por qué el activismo puede ser una estrategia beneficiosa para sensibilizar a los profesionales y para el bienestar y empoderamiento de las y los propios activistas.

Palabras clave

Activismo, Análisis temático, Estigma social, Salud mental

Citas

Andrés-Rodríguez, Laura; Pérez-Aranda, Adrián; Feliu-Soler, Albert; Rubio-Valera, Maria; Aznar-Lou, Ignacio; Serrano-Blanco, Antoni; Juncosa, Miquel; Tosas, Anaïs; Bernadàs, Albert & Luciano, Juan V. (2017). Effectiveness of the “What’s Up!” Intervention to Reduce Stigma and Psychometric Properties of the Youth Program Questionnaire (YPQ): Results from a Cluster Non-randomized Controlled Trial Conducted in Catalan High Schools. Frontiers in Psychology, 8(SEP), 1-12. https://doi.org/10.3389/fpsyg.2017.01608

Angermeyer, Matthias C. & Matschinger, Herbert (2005). Labeling - Stereotype - Discrimination: An investigation of the stigma process. Social Psychiatry and Psychiatric Epidemiology, 40(5), 391-395. https://doi.org/10.1007/s00127-005-0903-4

Aznar-Lou, Ignacio; Serrano-Blanco, Antoni; Fernández, Ana; Luciano, Juan V. & Rubio-Valera, Maria (2015). Attitudes and intended behaviour to mental disorders and associated factors in catalan population, Spain: cross-sectional population-based survey. BMC Public Health, 16(1), 127. https://doi.org/10.1186/s12889-016-2815-5

Braun, Virginia & Clarke, Victoria. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. https://doi.org/10.1191/1478088706qp063oa

Corker, Elizabeth; Hamilton, Sarah; Henderson, Claire; Weeks, Craig; Pinfold, Vanessa; Rose, Diana; Williams, Paul; Flach, Clare; Gill, Valdeep; Lewis-Holmes, Elanor & Thornicroft, Graham. (2013). Experiences of discrimination among people Using mental health services in England 2008-2011. British Journal of Psychiatry, 202(s55), s58-s63. https://doi.org/10.1192/bjp.bp.112.112912

Corrigan, Patrick W. (2004). How stigma interferes with mental health care. American Psychologist, 59(7), 614-625. https://doi.org/10.1037/0003-066X.59.7.614

Corrigan, Patrick W.; Druss, Benjamin G. & Perlick, Deborah A. (2014). The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health Care. Psychological Science in the Public Interest, 15(2), 37-70. https://doi.org/10.1177/1529100614531398

Corrigan, Patrick W.; Kerr, Amy & Knudsen, Lissa (2005). The stigma of mental illness: Explanatory models and methods for change. Applied and Preventive Psychology, 11(3), 179-190. https://doi.org/10.1016/j.appsy.2005.07.001

Corrigan, Patrick W. & Watson, Amy C. (2002). Understanding the impact of stigma on people with mental illness. World Psychiatry, 1(1), 16-20. http://www.ncbi.nlm.nih.gov/pubmed/16946807

Eiroa-Orosa, Francisco José & García-Mieres, Helena (2019). A Systematic Review and Meta-analysis of Recovery Educational Interventions for Mental Health Professionals. Administration and Policy in Mental Health and Mental Health Services Research, 46(6), 724-752. https://doi.org/10.1007/s10488-019-00956-9

Eiroa-Orosa, Francisco José & Limiñana-Bravo, Laura (2019). An Instrument to Measure Mental Health Professionals’ Beliefs and Attitudes towards Service Users’ Rights. International Journal of Environmental Research and Public Health, 16(2), 244. https://doi.org/10.3390/ijerph16020244

Eiroa-Orosa, Francisco José & Lomascolo, María (2018). Training mental health activists increases the well-being of participants with high baseline levels of self-stigma: results of the Obertament training evaluation. American Journal of Orthopsychiatry, 88(6), 617-625. https://doi.org/10.1037/ort0000376

Eiroa-Orosa, Francisco José; Lomascolo, María & Tosas-Fernández, Anaïs (2021). Efficacy of an Intervention to Reduce Stigma Beliefs and Attitudes among Primary Care and Mental Health Professionals: Two Cluster Randomised-Controlled Trials. International Journal of Environmental Research and Public Health, 18(3), 1214. https://doi.org/10.3390/ijerph18031214

Gaebel, Wolfgang; Rössler, Wulf & Sartorius, Norman (Eds.) (2017). The Stigma of Mental Illness - End of the Story? Springer.

https://doi.org/10.1007/978-3-319-27839-1

Gerlinger, Gabriel; Hauser, Marta; De Hert, Marc; Lacluyse, Kathleen; Wampers, Martien & Correll, Christoph U. (2013). Personal stigma in schizophrenia spectrum disorders: A systematic review of prevalence rates, correlates, impact and interventions. World Psychiatry, 12(2), 155-164. https://doi.org/10.1002/wps.20040

Goffman, Erving (1963). Stigma: Notes on the Management of Spoiled Identity. Prentice-Hall.

Goldman, Howard H. & Morrissey, Joseph P. (1985). The alchemy of mental health policy: homelessness and the fourth cycle of reform. American Journal of Public Health, 75(7), 727-731. https://doi.org/10.2105/AJPH.75.7.727

Hayward, Peter & Bright, Jenifer A. (1997). Stigma and mental illness: A review and critique. Journal of Mental Health, 6(4), 345-354. https://doi.org/10.1080/09638239718671

Henderson, Claire; Noblett, Jo; Parke, Hannah; Clement, Sarah; Caffrey, Alison; Gale-Grant, Oliver; Schulze, Beate; Druss, Benjamin & Thornicroft, Graham. (2014). Mental health-related stigma in health care and mental health-care settings. The Lancet Psychiatry, 1(6), 467-482. https://doi.org/10.1016/S2215-0366(14)00023-6

Hervey, Nicholas (1986). Advocacy or folly: The Alleged Lunatics’ Friend Society, 1845-63. Medical History, 30(03), 245-275. https://doi.org/10.1017/S0025727300045701

Jenkins, Janis Hunter & Carpenter-Song, Elizabeth A. (2009). Awareness of Stigma Among Persons With Schizophrenia. The Journal of Nervous and Mental Disease, 197(7), 520-529. https://doi.org/10.1097/nmd.0b013e3181aad5e9

Krupchanka, Dzmitry & Thornicroft, Graham (2017). Discrimination and Stigma. In Wolfgang Gaebel, Wulf Rössler & Norman Sartorius (Eds.), The Stigma of Mental Illness - End of the Story? (pp. 123-139). Springer.

https://doi.org/10.1007/978-3-319-27839-1_7

Large, Matthew M.; Ryan, Christopher J.; Nielssen, Olav B. & Hayes, Rachel A. (2008). The danger of dangerousness: why we must remove the dangerousness criterion from our mental health acts. Journal of Medical Ethics, 34(12), 877-881. https://doi.org/10.1136/jme.2008.025098

Lien, Yin-Yi; Lin, Hui-Shin; Lien, Yin-Ju; Tsai, Chi-Hsuan; Wu, Ting-Ting; Li, Hua & Tu, Yu-Kang (2021). Challenging mental illness stigma in healthcare professionals and students: a systematic review and network meta-analysis. Psychology & Health, 36(6), 669-684. https://doi.org/10.1080/08870446.2020.1828413

Link, Bruce G.; Struening, Elmer L.; Neese-Todd, Sheree; Asmussen, Sara; Phelan, Jo C.; Consequences, The; With, People & Illnesses, Mental. (2001). Stigma as a barrier to recovery: The consequences of stigma for the self-esteem of people with mental illnesses. Psychiatric Services, 52(12), 1621-1626.

Link, Bruce G. & Stuart, Heather (2017). On Revisiting Some Origins of the Stigma Concept as It Applies to Mental Illnesses. In Wolfgang Gaebel, Wulf Rössler & Norman Sartorius (Eds.), The Stigma of Mental Illness - End of the Story? (pp. 3-28). Springer. https://doi.org/10.1007/978-3-319-27839-1_1

Livingston, James D. & Boyd, Jennifer E. (2010). Correlates and consequences of internalized stigma for people living with mental illness: A systematic review and meta-analysis. Social Science and Medicine, 71(12), 2150-2161. https://doi.org/10.1016/j.socscimed.2010.09.030

Nash, Michael (2013). Diagnostic overshadowing: a potential barrier to physical health care for mental health service users. Mental Health Practice, 17(4), 22-26. https://doi.org/10.7748/mhp2013.12.17.4.22.e862

Obertament (2013). Estrategias de lucha contra el estigma en salud mental. Dossiers Del Tercer Sector, 26, 1-18.

Obertament (2016). L’estigma i la discriminació a la atenció a la salut. https://www.spora.ws/wp-content/uploads/2017/03/2016.-Cat.-Estigma-i-Salut.pdf

Ramos Montes, Josep (2021). Paternalismo y autonomismo en la relación de ayuda: una reflexión desde la salud mental. Folia Humanística, 2(4), 1-21.

Renn, Kristen A. (2007). LGBT Student Leaders and Queer Activists: Identities of Lesbian, Gay, Bisexual, Transgender, and Queer Identified College Student Leaders and Activists. Journal of College Student Development, 48(3), 311-330. https://doi.org/10.1353/csd.2007.0029

Rubio-Valera, Maria; Aznar-Lou, Ignacio; Vives-Collet, Mireia; Fernández, Ana; Gil-Girbau, Montserrat & Serrano-Blanco, Antoni (2018). Reducing the Mental Health-Related Stigma of Social Work Students. Research on Social Work Practice, 28(2), 164-172. https://doi.org/10.1177/1049731516641492

Rubio-Valera, Maria; Fernández, Ana; Evans-Lacko, Sara; Luciano, Juan Vivente; Thornicroft, Graham; Aznar-Lou, Ignacio & Serrano-Blanco, Antoni (2016). Impact of the mass media OBERTAMENT campaign on the levels of stigma among the population of Catalonia, Spain. European Psychiatry, 31, 44-51. https://doi.org/10.1016/j.eurpsy.2015.10.005

Sashidharan, Sashi P.; Mezzina, Roberto & Puras, Dainius (2019). Reducing coercion in mental healthcare. Epidemiology and Psychiatric Sciences, 28(6), 605-612. https://doi.org/10.1017/S2045796019000350

Saunders, Benjamin; Sim, Julius; Kingstone, Tom; Baker, Shula; Waterfield, Jackie; Bartlam, Bernadette; Burroughs, Heather & Jinks, Clare (2018). Saturation in qualitative research: exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893-1907. https://doi.org/10.1007/s11135-017-0574-8

Schulze, Beate (2007). Stigma and mental health professionals: A review of the evidence on an intricate relationship. International Review of Psychiatry, 19(2), 137-155. https://doi.org/10.1080/09540260701278929

Sheehan, Lindsay; Nieweglowski, Katherine & Corrigan, Patrick W. (2017). Structures and Types of Stigma. In Wolfgang Gaebel, Wulf Rössler & Norman Sartorius (Eds.), The Stigma of Mental Illness - End of the Story? (pp. 43-66). Springer. https://doi.org/10.1007/978-3-319-27839-1_3

Vázquez-Barquero, José Luis & García, José (1999). Deinstitutionalization and psychiatric reform in Spain. European Archives of Psychiatry and Clinical Neuroscience, 249(3), 128-135. https://doi.org/10.1007/s004060050077

Biografía del autor/a

Francisco José Eiroa-Orosa, Universitat de Barcelona

Investigador Ramon i Cajal acreditat a catedràtic a la Universitat de Barcelona. Membre de la Comissió de Seguiment del Consell Assessor de Salut Mental i Addiccions. President del Grup de Recerca en Primera Persona de la Federació VEUS. Activista a Obertament, i a l'Associació Catalana de Professionals de Salut Mental.

Maria Rovira Gimó, Universidad de Barcelona

Psicòloga social i psicoterapeuta en formació amb experiència en diverses entitats dedicades a la integració social.

Publicado

03-04-2024

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