Qué significa la recuperación para las personas usuarias de servicios de salud mental en Cataluña
Resumen
En este estudio exploramos el significado del concepto de recuperación desde la perspectiva de las personas usuarias de servicios de salud mental en Cataluña. Realizamos cinco grupos focales para recopilar los datos, y utilizamos la teoría fundamentada para el análisis. Identificamos once temas o tópicos en torno a los cuales los participantes organizaron sus argumentos. La manera como las personas entienden la recuperación está vinculada al marco conceptual del que derivan sus ideas: el modelo biomédico o el paradigma de la recuperación. Algunos de estos temas coinciden con el modelo CHIME, propio del marco internacional de las políticas públicas orientadas a la recuperación. Los tópicos o temas que se corresponden con supuestos del modelo biomédico generaron perspectivas en conflicto y contraargumentaciones. Participar en espacios de apoyo mutuo y activismo de salud mental parece favorecer la incorporación del marco conceptual del paradigma de la recuperación.
Palabras clave
Investigación Cualitativa, Modelo Biomédico, Salud Mental, Significado de RecuperaciónCitas
Adame, Alexandra L. & Knudson, Roger (2007). Beyond the counter-narrative: Ex-ploring alternative narratives of recovery from the psychiatric survivor movement. Narrative Inquiry, 17(2), 157–178. https://doi.org/10.1075/ni.17.2.02ada
Ahern, Laurie & Fisher, Daniel (1999). Personal Assistance in Community Existence. A recovery guide. National Empowerment Center, Inc.
Andresen, Retta; Oades, Lindsay & Caputi, Peter (2003). The experience of reco-very from schizophrenia: Towards an empirically validated stage model. Australian and New Zealand Journal of Psychiatry, 37(5), 586–594.
https://doi.org/10.1046/j.1440-1614.2003.01234.x
Anthony, William A. (1993). Recovery from mental illness: The guiding vision of the mental health service system in the 1990s. Psychosocial Rehabilitation Journal, 16(4), 11–23. https://doi.org/10.1037/h0095655
Agència de Qualitat i Avaluació Sanitària de Catalunya (2017). Informe Central de Resultats. Àmbit de salut mental i addiccions. Departament de Salut. https://observatorisalut.gencat.cat/web/.content/minisite/observatorisalut/ossc_cen-tral_resultats/informes/fitxers_estatics/Central_resultats_salut_mental_dades_2017.pdf
Aston, Vivienne & Coffey, Michael (2012). Recovery: What mental health nurses and service users say about the concept of recovery. Journal of Psychiatric and Mental Health Nursing, 19(3), 257–263. https://doi.org/10.1111/j.1365-2850.2011.01776.x
Bryant, Antony (2003). A Constructive/ist Response to Glaser. About Barney G. Gla-ser: Constructivist Grounded Theory? FQS 3(3). Forum : Qualitative Social Re-search, 4(1), https://doi.org/10.17169/fqs-4.1.757
Carmona Calvo, José; García-Cubillana de la Cruz, Paplo; Millán Carrasco, Almude-na; Huizing, Evelyn; Fernández Regidor, Gonzalo; Rojo Villalba, Matilde & Aguile-ra Prieto, Lola (2016). III Plan Integral de Salud Mental de Andalucía, 2016-20. https://www.sspa.juntadeandalucia.es/servicioandaluzdesalud/sites/default/files/sincfiles/wsas-media-pdf_publicacion/2021/III-PISMA_041016.pdf
Cazorla Palomo, Josep (2018). Análisis del mundo asociativo «en primera persona» en salud mental en Cataluña. Alternativas. Cuadernos de Trabajo Social, 25, 115–132. https://doi.org/10.14198/ALTERN2018.25.06
Charmaz, Kathy (1990). “Discovering” Chronic Illness: Using Theory. Social Science and Medicine, 30(11), 1161–1172.
Charmaz, Kathy (2000). Constructivist and objectivist grounded theory. En Norman Denzin & Yvonna Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 509–535). SAGE Publications Inc.
Charmaz, Kathy (2006). Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. SAGE Publications, Inc. SAGE Publications Ltd.
Charmaz, Kathy (2008). Grounded Theory as an Emergent Method. Handbook of Emergent Methods, 3, 155–170.
Cohen, David & Hughes, Shannon (2011). How do people taking psychiatric drugs explain their “Chemical Imbalance?” Ethical Human Psychology and Psychiatry, 13(3), 176–189. https://doi.org/10.1891/1559-4343.13.3.176
Consejería de Sanidad de Castilla – La Mancha (2018). Plan de salud mental de Cas-tilla - La Mancha. https://www.castillalamancha.es/sites/default/files/documentos/pdf/20190927/plan_salud_mental_2018-2025.pdf
Copeland, Mary Ellen (1997). Wellness Recovery Action Plan (Updated Ed). Human Potential Press.
Copeland, Mary Ellen (2004). Self-Determination in Mental Health Recovery: Taking Back Our Lives. En, Jessica A. Jonikas & Judith A. Cook (Eds.), National Self-Determination & Psychiatric Disability Invitational Conference (pp. 68–82). Uni-versity of Illinois. https://www.theweb.ngo/history/recovery/UICsdconfdoc19.pdf#page=74
Corbin, Juliet M. & Strauss, Anselm (1990). Grounded theory research: Procedures, canons, and evaluative criteria. Qualitative Sociology, 13(1), 3–21. https://doi.org/10.1007/BF00988593
Cruwys, Tegan; Stewart, Bridie; Buckley, Lisa; Gumley, James & Scholz, Brett (2020). The recovery model in chronic mental health: A community-based investi-gation of social identity processes. Psychiatry Research, 291(09), 241–249. https://doi.org/10.1016/j.psychres.2020.113241
Davidson, Larry; Borg, Marit; Marin, Izabel; Topor, Alain; Mezzina, Roberto & Sells, Dave (2005). Processes of Recovery in Serious Mental Illness : Findings from a Mul-tinational Study Related papers Processes of Recovery in Serious Mental Illness : Findings from a Multinational Study. American Journal of Psychiatric Rehabilitati-on, 8(3), 177–201. https://doi.org/10.1080/15487760500339360
Deacon, Brett J. (2013). The biomedical model of mental disorder: A critical analysis of its validity, utility, and effects on psychotherapy research. Clinical Psychology Review, 33(7), 846–861. https://doi.org/10.1016/j.cpr.2012.09.007
Deacon, Brett J. & McKay, Dean (2015). The Biomedical Model of Psychological Pro-blems: A Call for Critical Dialogue. Lancet, 16, 2–3. https://doi.org/10.5127/pr.00
Eisenberg, Daniel; Downs, Marilyn F.; Golberstein, Ezra & Zivin, Kara (2009). Stig-ma and help seeking for mental health among college students. Medical Care Re-search and Review, 66(5), 522–541. https://doi.org/10.1177/1077558709335173
Faulkner, Alison (2017). Survivor research and Mad Studies: the role and value of experiential knowledge in mental health research. Disability and Society, 32(4), 500–520. https://doi.org/10.1080/09687599.2017.1302320
Generalitat de Catalunya (2017). Pla integral d’atenció a les persones amb trastorn mental i addiccions 2017-2019. Generalitat de Catalunya. https://presidencia.gencat.cat/web/.content/departament/plans_sectorials_i_interdepartamen-tals/pla_integral_trastorn_mental_addiccions/docs/estrategia_2017_2019.pdf
Gibbs, Graham (2009). Analyzing Qualitative Data. SAGE Publications Inc.
Glaser, Barney & Strauss, Anselm (1967/2006). The discovery of grounded theory: Strategies for qualitative research. Aldine Publishing.
González, Jodi M.; Alegrid, Margarita & Prihoda, Thomas J. (2005). How do attitu-des toward mental health treatment vary by age, gender, and ethnicity/race in young adults? Journal of Community Psychology, 33(5), 611–629. https://doi.org/10.1002/jcop.20071
Governo Italiano. Presidenza del Consiglio dei Ministri (2011). Piano nazionale di ripresa e resilienza. Autor. https://www.governo.it/sites/governo.it/files/PNRR.pdf
Herrero-Jaén, Sara & Madariaga-Casquero, Lydia (2018). Las Variables de Salud y su aplicación en el cálculo del estado de salud de las personas. Ene. Revista de En-fermería, 12(3), 1–21. http://ene-enfermeria.org/ojs/index.php/ENE/article/view/875
Kidd, Susan; Kenny, Amanda & Mckinstry, Carol (2015). Exploring the meaning of recovery-oriented care: An action-research study. International Journal of Mental Health Nursing, 24(1), 38–48. https://doi.org/10.1111/inm.12095
Le Boutillier, Clair; Leamy, Mary; Bird, Victoria J.; Davidson, Larry; Williams, Julie & Slade, Mike (2011). What Does Recovery Mean in Practice? A Qualitative Analysis of International Recovery-oriented Practice Guidance, 62(12), 1470–1476.
Leamy, Mary; Bird, Victoria J.; Le Boutillier, Clair; Williams, Julie & Slade, Mike (2011). Conceptual framework for personal recovery in mental health: Systematic review and narrative synthesis. British Journal of Psychiatry, 199(6), 445–452. https://doi.org/10.1192/bjp.bp.110.083733
Lebowitz, Matthew S., & Ahn, Woo-Kyoung (2014). Effects of biological explana-tions for mental disorders on clinicians’ empathy. Proceedings of the National Academy of Sciences of the United States of America, 111(50), 17786–17790. https://doi.org/10.1073/pnas.1414058111
Lundström, Lena Grönblom (2008). Further arguments in support of a social huma-nistic perspective in physiotherapy versus the biomedical model. Physiotherapy Theory and Practice, 24(6), 393–396. https://doi.org/10.1080/09593980802511789
Mackenzie, Corey S.; Gekoski, William L. & Knox, V. Jane (2006). Age, gender, and the underutilization of mental health services: The influence of help-seeking atti-tudes. Aging and Mental Health, 10(6), 574–582. https://doi.org/10.1080/13607860600641200
Mancini, Michael A. (2007). A qualitative analysis of turning points in the recovery process. American Journal of Psychiatric Rehabilitation, 10(3), 223–244. https://doi.org/10.1080/15487760701508359
Martínez-Flores, Jaume; Pujal, Margot & Mora, Enrico (2021). Ética del cuidado y atención pública en salud mental: un estudio de caso en Barcelona. Salud Colecti-va, 17(e2966), 1–18. https://doi.org/10.18294/sc.2021.2966
Mead, Shery & Copeland, Mary Ellen (2000). What recovery means to us: Consumers’ perspectives. Community Mental Health Journal, 36(3), 315–328. https://doi.org/10.1023/A:1001917516869
Morgan, David L. (1996). A New Era of Focus Groups View project Basic and Advan-ced Focus Groups, from Sage View project. Focus Groups Article in Annual Review of Sociology, 22(March), 129–152. https://doi.org/10.1146/annurev.soc.22.1.129
Muhr, Thomas (1991). ATLAS/ti - A prototype for the support of text interpretation. Qualitative Sociology, 14(4), 349–371. https://doi.org/10.1007/BF00989645
Noiseux, Sylvie & Ricard, Nicole (2008). Recovery as perceived by people with schi-zophrenia, family members and health professionals: A grounded theory. Interna-tional Journal of Nursing Studies, 45(8), 1148–1162. https://doi.org/10.1016/j.ijnurstu.2007.07.008
Oña-Esteve, Genís (2018, 23 de enero). Modelo biomédico en salud mental, un pa-radigma a superar [entrada de blog]. Acta Sanitaria. https://www.actasanitaria.com/modelo-biomedico-en-salud-mental-un-paradigma-a-superar/
Piat, Myra; Sabetti, Judith; Couture, Audrey; Sylvestre, John; Provencher, Helene; Botschner, Janos & Stayner, David (2009). What does recovery mean for me? Pers-pectives of Canadian mental health consumers. Psychiatric Rehabilitation Journal, 32(3), 199–207. https://doi.org/10.2975/32.3.2009.199.207
Pilgrim, David (2008). “Recovery” and current mental health policy. Chronic Illness, 4(4), 295–304. https://doi.org/10.1177/1742395308097863
Quine, Willard van Ormand. (1981/1982). Theories and Things (2nd Ed.). Harvard University Press.
Rogers, Sally; Chamberlin, Judi; Ellison, Marsha Langer & Crean, Tim (1997). A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Service, 48(8), 1042–1047.
Rojo-Rodés, J. Emilio; San Pío, María Jesús & Eiroa-Orosa, Francisco (2019). Get active for mental health: a project evaluated for active involvement of families and users. International Journal of Integrated Care, 19(419–420), 1–2. https://ijic.org/articles/abstract/10.5334/ijic.s3419/
Sampietro, Hernán María (2016). Del diagnóstico al activismo, un proceso personal de empoderamiento. Asociación Española de Neuropsiquiatría, 36(129), 193–207. https://doi.org/10.4321/S0211-57352016000100013
Sampietro, Hernán María & Gavaldà-Castet, Carla (2018). Manual per a la recupera-ció i l’autogestió del benestar. Mental, Activa’t per la Salut. https://activament.org/wp-content/uploads/2021/03/Manual-Recuperació-i-Autogestió-Benestar-R.pdf
Shepherd, Geoff; Boardman, Jed & Slade, Mike (2008). Making Recovery a Reality. Scottish Recovery Network, 1–23. https://www.centreformentalhealth.org.uk/sites/default/files/2018-09/Making%20recovery%20a%20reality%20policy%20paper.pdf
Slade, Mike; Amering, Michaela & Oades, Lindsay (2008). Recovery: An internatio-nal perspective. Epidemiologia e Psichiatria Sociale, 17(2), 128–137. https://doi.org/10.1017/S1121189X00002827
Spaniol, Leroy; Wewiorski, Nancy J.; Gagne, Cheryl & Anthony, William. A. (2002). The process of recovery from schizophrenia. International Review of Psychiatry, 14(4), 327–336. https://doi.org/10.1080/0954026021000016978
Strauss, Anselm & Corbin, Juliet M. (1998). Basics of Qualitative Research: Techni-ques and Procedures for Developing Grounded Theory (2nd ed.). Sage Publications Inc.
Temkin-Greener, Helena & Clark, Kathryn T. (1988). Ethnicity, gender, and utiliza-tion of mental health services in a medicaid population. Social Science and Medi-cine, 26(10), 989–996. https://doi.org/10.1016/0277-9536(88)90216-X
Thornton, Tim (2012). Is recovery a model? Recovery of People with Mental Illness, 236–251. https://doi.org/10.1093/med/9780199691319.003.0015
Thornton, Tim & Lucas, Peter (2010). On the very idea of a recovery model for mental health. Journal of Medical Ethics, 37(1), 24–28. https://doi.org/10.1136/jme.2010.037234
United Nations (2006). Convention on the rights of persons with disabilities and Op-tional Protocol. United Nations. United Nations. https://www.un.org/disabilities/documents/convention/convoptprot-e.pdf
Wade, Derick T. & Halligan, Peter W. (2004). Do biomedical models of illness make for good healthcare systems? British Medical Journal, 329(7479), 1398–1401. https://doi.org/10.1136/bmj.329.7479.1398
Wittgenstein, Ludwig. (1953/2017). Investigaciones filosóficas. (Trad. de Jesús Pa-dilla Gálvez). Editorial Trotta.
World Health Organization (2013). Mental Health Action Plan 2013-2020. Autor. https://www.who.int/publications/i/item/9789241506021
World Health Organization (2019). Person-centred recovery planning for mental health and well-being. Who QualityRights self-help tool. Autor. https://www.who.int/publications/i/item/who-qualityrights-self-help-tool
World Health Organization (2021). Guidance on community mental health services. Promoting person-centred and rights-based approaches. Autor. https://www.who.int/publications/i/item/9789240025707
World Health Organization - Regional Office for Europe (2010). User empowerment in mental health – a statement by the WHO Regional Office for Europe. WHO Re-gional Office for Europe. Autor. http://www.euro.who.int/__data/assets/pdf_file/0020/113834/E93430.pdf
World Health Organization - Regional Office for Europe (2013). The European Men-tal Health Action Plan 2013-2020. Autor. http://www.euro.who.int/__data/assets/pdf_file/0020/280604/WHO-Europe-Mental-Health-Acion-Plan-2013-2020.pdf
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