Meanings for mental distress in mutual support spaces and activism: A life story
Abstract
In mental health our experience and the knowledge derived from it is usually omitted from the practices that are used to treat us. In this work, we explore what meanings are built for the experience of mental distress when we participate in mutual support spaces and activism. We carried out a qualitative and exploratory research following the Mad Studies and the Survivor Research framework. The life story of a mental health activist was used as a method. We considered the Survivor Research recommendations and the comprehensive narrative analysis for the analysis. The participant understands her mental distress as a journey to recovery in which she walks with hope and optimism. We discussed these findings and concluded that more research is required to challenge the prevailing biomedical model and its hegemony in defining our experiences of mental distress and /or psychosocial diversity.
Keywords
Qualitative research, Mental Health Recovery, Life story, Mad studiesReferences
Acharya, Tanvi & Agius, Marc (2017). The importance of hope against other factors in the recovery of mental illness. Psychiatria Danubina, 29(Suppl 3), 619-622.
Adame, Alexandra & Knudson, Roger M. (2007). Beyond the counter-narrative: Exploring alternative narratives of recovery from the psychiatric survivor movement. Narrative Inquiry, 17(2), 157-178. https://doi.org/10.1075/ni.17.2.02ada
Anthony, William A. (1993). Recovery from mental illness: The guiding vision of the men-tal health service system in the 1990s. Psychosocial Rehabilitation Journal, 16(4), 11-23. https://doi.org/10.1037/h0095655
Bertaux, Daniel (2005). Los relatos de vida: Perspectiva etnosociológica. Edicions Bel-laterra.
Borkman, Thomasina (1976). Experiential Knowledge: A New Concept for the Analysis of Self-Help Groups. Social Service Review, 50(3), 445-456.
Caponi, Sandra (2016). Entre el gobierno de sí y el gobierno de los otros: Una hermenéu-tica psiquiátrica de sí. Signos filosóficos, 18(36), 60-87.
Caponi, Sandra & Martínez-Hernáez Ángel (2013). Kraepelin, el desafío clasificatorio y otros enredos anti-narrativos. Scientiae Studia, 11(3), 467-489. https://doi.org/10.1590/S1678-31662013000300002
Castrodale, Mark Anthony (2015). Mad matters: A critical reader in Canadian mad studies. Scandinavian Journal of Disability Research, 17(3), 284-246. https://doi.org/10.1080/15017419.2014.895415
Chamberlin, Judi (1975). Women’s Oppression and Psychiatry Oppression. En Dorothy E. Smith & Sarah J. David (Eds.), Women look at psychiatry (pp. 39-46). Press Gang Publi-shers.
Cornejo, Marcela; Mendoza, Francisca & Rojas, Rodrigo C. (2008). La Investigación con Relatos de Vida: Pistas y Opciones del Diseño Metodológico. Psykhe (Santiago), 17(1). https://doi.org/10.4067/S0718-22282008000100004
Cornejo, Marcela; Rojas, Rodrigo C. & Mendoza Francisca (2009). From testimony to life story: The experience of professionals in the Chilean National Commission on Political Imprisonment and Torture. Peace and Conflict: Journal of Peace Psychology, 15(2), 111-133. https://doi.org/10.1080/10781910802603450
Correa-Urquiza, Martín (2014). La irrupción posible del saber profano. Hacia una cons-trucción colectiva del conocimiento en salud mental. Temps d’Educació, 47, 83- 95.
Correa-Urquiza, Martín (2018). La condición del diálogo. Saberes profanos y nuevos con-textos del decir. Revista de la Asociación Española de Neuropsiquiatría, 38(134), 567-585. https://doi.org/10.4321/S0211-57352018000200012
Deacon, Brett J. (2013). The biomedical model of mental disorder: A critical analysis of its validity, utility, and effects on psychotherapy research. Clinical Psychology Review, 33(7), 846-861. https://doi.org/10.1016/j.cpr.2012.09.007
Deegan, Patricia E. (1997). Recovery and empowerment for people with psychiatric disa-bilities. Social Work in Health Care, 25(3), 11-24. https://doi.org/10.1300/J010v25n03_02
Dougherty, Ryan J. (2019). The Psychological Management of the Poor: Prescribing Psy-choactive Drugs in the Age of Neoliberalism: The Psychological Management of the Poor. Journal of Social Issues, 75(1), 217-237. https://doi.org/10.1111/josi.12313
Faulkner, Alison (2004). The ethics of survivor research: Guidelines for the ethical con-duct of research carried out by mental health service users and survivors (1.a ed.). The Policy Press.
Faulkner, Alison (2017). Survivor research and Mad Studies: The role and value of experi-ential knowledge in mental health research. Disability & Society, 32(4), 500-520. https://doi.org/10.1080/09687599.2017.1302320
Faulkner, Alison & Basset, Thurstine (2010). Helping Hand: Consultations with Service Users about Peer Support. Together for Mental Wellbeing.
Hacking, Ian (2001). ¿La construcción social de qué?. Paidós.
Hidalgo López, Bárbara; Dueñas Rello, Érik & Molina García, Gabriel (2017). Una aproxi-mación sociológica a la depresión: Flexibilidad, hiperindividualización y medicalización en la sociedad postmoderna. Revista Sociológica del Pensamiento Crítico, 11(2), 9-33.
Keller Garganté, Christel (2022). Apoyo mutuo, autogestión y activismo en salud mental. Elementos para la democratización del cuidado. Athenea digital, 22(3), e3130. https://doi.org/10.5565/rev/athenea.3130
Leamy, Mary; Bird, Victoria; Le Boutillier, Clair; Williams, Julie & Slade, Mike (2011). Conceptual framework for personal recovery in mental health: Systematic review and narrative synthesis. The British Journal of Psychiatry: The Journal of Mental Science, 199(6), 445-452. https://doi.org/10.1192/bjp.bp.110.083733
LeFrancois, Brenda A.; Menzies, Robert & Reaume, Geoffrey (2013). Mad Matters: A Critical Reader in Canadian Mad Studies. Canadian Scholars Press Inc.
Linardelli, María Florencia (2015). Salud mental y género Diálogos y contrapuntos entre biomedicina, feminismos e interseccionalidad. Millcayac: Revista Digital de Ciencias Sociales, 2(3), 191-224.
Martínez Hernáez, Ángel (2006). La mercantilización de los estados de ánimo. El consu-mo de antidepresivos y las nuevas biopolíticas de las aflicciones. Política y Sociedad, 43(3), 43-56.
Martinez-Hernaez, Angel (2020). Neuronarratives of Affliction: Antidepressants, Neuro-politics and the «Entrepreneur of Oneself». Culture, Medicine and Psychiatry, 44(2), 230-248. https://doi.org/10.1007/s11013-019-09651-8
Nairn, Raymond G. (2007). Media portrayals of mental illness, or is it madness? A review. Australian Psychologist, 42(2), 138-146. https://doi.org/10.1080/00050060701280623
Noorani, Tehseen (2013). Service user involvement, authority and the ‘expert-by-experience’ in mental health. Journal of Political Power, 6(1), 49-68. https://doi.org/10.1080/2158379X.2013.774979
Pretto, Albertina (2011). Analizar las historias de vida: Reflexiones metodológicas y epis-temológicas. Tabula Rasa: revista de humanidades, 15, 171-194.
Russo, Jasna (2012). Survivor-Controlled Research: A New Foundation for Thinking about Psychiatry and Mental Health. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 13(1). https://doi.org/10.17169/fqs-13.1.1790
Sampietro, Hernán María (2016). Del diagnóstico al activismo, un proceso personal de empoderamiento. Revista de la Asociación Española de Neuropsiquiatría, 36(129), 193-207. https://doi.org/10.4321/S0211-57352016000100013
Sampietro, Hernán María, & Sicilia, Laura (2018). Guía para los Grupos de Ayuda Mutua de Salud Mental en primera persona. Activa’t per la Salut Mental. Barcelona. https://www.activament.org/wp-content/uploads/2021/03/Guia-GAM-CAST.pdf
Schrank, Beate & Slade, Mike (2007). Recovery in psychiatry. Psychiatric Bulletin, 31(9), 321-325. https://doi.org/10.1192/pb.bp.106.0134257
Sweeney, Angela (2016). Why Mad Studies Needs Survivor Research and Survivor Re-search Needs Mad Studies. Intersectionalities: A Global Journal of Social Work Analy-sis, Research, Polity, and Practice, 5(3), 36-61.
Wallcraff, Janet (2009). From Activist to Researcher and Part-Way Back. En Angela Sweeney, Peter Beresford, Alison Faulkner, Mary Nettle & Diana Rose (Eds.), This is Survivor Research (pp. 132-139). PCCS Books.
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